A UK charity driving Digital Health Initiatives for kids and families impacted by Sickle Cell and Thalasseamia.
Share
Keep the momentum going and spread awareness
Published 7 months ago • 3 min read
Hope Through Progress: Advancing Sickle Cell Care Globally.🧡
Hello Reader,
In this week's newsletter, we have something exciting and different planned for you! But first, I want to hear all about what you did for World Sickle Cell Day. Share your stories and activities with us!
🤩World Sickle Cell Day Celebration
Yesterday, June 19th, we celebrated World Sickle Cell Day, a day dedicated to raising awareness and advancing care for those living with Sickle Cell Anemia (SCA). Each year, I witness more and more initiatives aimed at increasing awareness, and to say I’m proud is an understatement. It’s incredibly refreshing to see the growing understanding of the challenges faced by sickle cell warriors. This collective awareness and action are steps towards ensuring that every individual, every child, deserves a pain-free life.
And as I always say, sickle cell awareness is continuous—it is never enough. The progress made in sickle cell awareness is truly inspiring. There are more educational campaigns, research initiatives, and support systems now than ever before. People are beginning to understand the daily struggles that come with this condition, and that empathy is paving the way for better support and care. However, we must continue to strive for more
Activity: To Do More
To keep the momentum going and spread awareness, we have a special activity for you. Pick any of the activities below or do all of them!
Activity 1:
a. Copy and share the sentence below on any of your social media account:
"In lieu of World Sickle Cell Day, ask me something about Sickle Cell or share what you heard about Sickle Cell?"
b. Tag @Crescent Kids so that we can answer the questions people ask or debunk myths.
Activity 2:
a. Copy and share the statement below on any of your social media accounts:
Ways to Show Support to Sickle Cell Warriors:
Donate Blood: Blood transfusions are a common treatment for SCA complications. Donating blood can directly help those in need.
Participate in Fundraising: Join or support fundraising events for sickle cell research and support organizations.
Volunteer: Offer your time and skills in person or remotely to organizations dedicated to supporting SCA warriors and their families.
To learn more, check out this sickle cell newsletter: https://crescent-kids.ck.page/posts
Activity 3:
a. Share with us a poem or a short story about what you learned about sickle cell anemia or how you support sickle cell warriors. b. Alongside, share your social media handle if you're comfortable with it. We will share these stories or poems to raise more awareness.
Moving Forward
Let us continue to build on this momentum of awareness and progress. It’s crucial that we do not relent in our efforts. Every voice counts, and every action taken brings us closer to a world where no one has to suffer from the pain of sickle cell disease. By ensuring understanding, supporting research, and advocating for better care, we can help ensure that everyone has the opportunity to live a pain-free life.
Thank you for participating and helping us spread the word about sickle cell awareness. Together, we can make a difference! I hope this little activity would make an ocean of difference some way.
👋🏾 With Love & everything nice,
Rasheedat
Catch Up With CK: Things That might Interest You!
1. Nothing beats personalized care and I am deeply rooting for this and how this would change SCD care significantly. What do you think?
🤭🚀Coming Up Next:
Stay tuned for exciting content in the upcoming newsletters! We definitely have more inspiring stories and valuable information to share.
The Power of Stories.🧡 The Force! @Orifunke My grandma is 88 today. A sickle-cell warrior. I hope I am able to get her to tell her story before she eventually leaves this world. 1:14 PM • Apr 7, 2020 1338 Retweets 4522 Likes Read 205 replies Hello Reader, I saw this tweet and it got me thinking about the importance of sharing our experiences. I saw it as a beautiful reminder of the invaluable wisdom and resilience found in stories of those who have lived not just for decades but who has a...
The Importance of Kindness.🧡 Click the image for more Hello Reader, I am also a big believer of being kind to yourself and how it can make it easier to be kind to others, on certain aspect like speaking to yourself and to others with kindness and maybe all aspects. You live with yourself more than anyone and one thing you might be missing in your self care routine is self-kindness. Living with sickle cell anemia (SCA) or caring for someone who does can be incredibly challenging. The physical,...
Empowering Our Warriors: Stories, Resources, and Entertainment.🧡 Click the image for more Hello Reader, This month, we’re shifting our focus to inspiration and empowerment for our sickle cell warriors and their caregivers. Living with sickle cell disease comes with its unique challenges, but it also brings incredible resilience and strength. Here are some heartwarming stories, valuable resources, and a special movie review that highlights the power of community, hope, and perseverance. 1....