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The newsletter for a UK charity driving Digital Health Initiatives for kids and families impacted by Sickle Cell and Thalasseamia.
September Edition: Sickle Cell Awareness Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. Honor, Rest, and Big Steps Forward. Hello Reader, Welcome to the World Sickle Cell Awareness Month. While the rest of the world uses this month to learn about the condition, we want to start by spotlighting our parents/caregivers, who carry the weight of it all. Whether your child has a mild genotype and rarely misses school, or...
August Edition: Back to School Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. The Invisible Backpack Item Hello Reader, As August rolls in, families all over the world are preping for school. But for a parent of a child with sickle cell, packing a school bag feels a bit different. You are also packing emergency numbers, extra water bottles, and perhaps a quiet worry. We know that sickle cell looks completely...
🚨 HEATWAVE ALERT Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. Heatwave: Tips to Keep Your Child with Sickle Cell Safe Hello Reader, The UK is experiencing another heatwave, with temperatures climbing into the 30s°C and an amber heat-health alert in place across England. While many people see sunshine as a chance to enjoy the outdoors, families living with sickle cell know that extreme heat can bring real health...