🚨 HEATWAVE ALERT Read Time: 5-10 minutes Who should read this?Parents, carers, teachers and anyone supporting a child living with sickle cell. Heatwave: Tips to Keep Your Child with Sickle Cell Safe Hello Reader, The UK is experiencing another heatwave, with temperatures climbing into the 30s°C and an amber heat-health alert in place across England. While many people see sunshine as a chance to enjoy the outdoors, families living with sickle cell know that extreme heat can bring real health...
about 2 months ago • 3 min read
The Crescent Circle Welcome to The Crescent Circle Hello Reader, Welcome (or welcome back) to The Crescent Circle! I'm excited to relaunch our newsletter with a renewed purpose to build a community that educates, inspires and mobilizes people around sickle cell disease and the work of Crescent Kids. Whether you're a parent, caregiver, healthcare professional, volunteer, donor or supporter, thank you for being part of this journey. Every story you read, every resource you share and every...
about 2 months ago • 2 min read
Just checking in – Have you had a chance to book your ELI App feedback session?🧡 Hello Reader, I hope you’re doing well! Just a quick note to say — we haven’t seen your session come through yet for the ELI App feedback testing, and we’d really love to hear your thoughts. Whether you're a parent or caregiver navigating life with sickle cell, your insight can truly shape how this app supports families like yours. It'd be really helpful if you could share with others as well. 👂🏽 It’s a simple...
about 1 year ago • 1 min read
Join Us in Testing the ELI App – Your Insights Matter!🧡 Hello Reader, We’re thrilled to invite you to be part of our exclusive user testing for the ELI App, designed to help parents better manage their child’s sickle cell care. Your feedback will further shape the app, ensuring it meets real needs. What’s Involved? A 30-minute 1:1 session where we explore your ideal features for the app. Hands-on testing of the app to share your first impressions. An opportunity to help improve a tool that...
over 1 year ago • 1 min read
2025: A Stronger Community.🧡 Hello Reader, Over the past year, Crescent Kids has grown tremendously – from expanding our support networks to launching new projects aimed at improving the quality of life for children living with Sickle Cell. I know we have been AWOL (Away With Out Leave) but we have been working tremendously to STOP THE PAIN. We are more committed than ever to supporting children with Sickle Cell and Thalassemia, empowering families, and driving impactful change in healthcare....
over 1 year ago • 2 min read
The Power of Stories.🧡 The Force! @Orifunke My grandma is 88 today. A sickle-cell warrior. I hope I am able to get her to tell her story before she eventually leaves this world. 1:14 PM • Apr 7, 2020 1338 Retweets 4522 Likes Read 205 replies Hello Reader, I saw this tweet and it got me thinking about the importance of sharing our experiences. I saw it as a beautiful reminder of the invaluable wisdom and resilience found in stories of those who have lived not just for decades but who has a...
about 2 years ago • 2 min read
The Importance of Kindness.🧡 Click the image for more Hello Reader, I am also a big believer of being kind to yourself and how it can make it easier to be kind to others, on certain aspect like speaking to yourself and to others with kindness and maybe all aspects. You live with yourself more than anyone and one thing you might be missing in your self care routine is self-kindness. Living with sickle cell anemia (SCA) or caring for someone who does can be incredibly challenging. The physical,...
about 2 years ago • 2 min read
Empowering Our Warriors: Stories, Resources, and Entertainment.🧡 Click the image for more Hello Reader, This month, we’re shifting our focus to inspiration and empowerment for our sickle cell warriors and their caregivers. Living with sickle cell disease comes with its unique challenges, but it also brings incredible resilience and strength. Here are some heartwarming stories, valuable resources, and a special movie review that highlights the power of community, hope, and perseverance. 1....
about 2 years ago • 2 min read
That Daily Summer Routine.🧡 Click the image for more Hello Reader, Summer is here, and with it comes a unique set of challenges and opportunities for families. Whether you're planning vacations, looking for activities to keep your children engaged, or just aiming to make the most of the sunny days, we've got you covered. Also, it's important to ensure that our sickle cell warriors have a safe and enjoyable season. Here are some essential tips to help you and your child navigate the summer...
about 2 years ago • 2 min read