Join Us in Testing the ELI App – Your Insights Matter!🧡 Hello Reader, We’re thrilled to invite you to be part of our exclusive user testing for the ELI App, designed to help parents better manage their child’s sickle cell care. Your feedback will further shape the app, ensuring it meets real needs. What’s Involved? A 30-minute 1:1 session where we explore your ideal features for the app. Hands-on testing of the app to share your first impressions. An opportunity to help improve a tool that...
2 months ago • 1 min read
2025: A Stronger Community.🧡 Hello Reader, Over the past year, Crescent Kids has grown tremendously – from expanding our support networks to launching new projects aimed at improving the quality of life for children living with Sickle Cell. I know we have been AWOL (Away With Out Leave) but we have been working tremendously to STOP THE PAIN. We are more committed than ever to supporting children with Sickle Cell and Thalassemia, empowering families, and driving impactful change in healthcare....
4 months ago • 2 min read
The Power of Stories.🧡 The Force! @Orifunke My grandma is 88 today. A sickle-cell warrior. I hope I am able to get her to tell her story before she eventually leaves this world. 1:14 PM • Apr 7, 2020 1338 Retweets 4522 Likes Read 205 replies Hello Reader, I saw this tweet and it got me thinking about the importance of sharing our experiences. I saw it as a beautiful reminder of the invaluable wisdom and resilience found in stories of those who have lived not just for decades but who has a...
12 months ago • 2 min read
The Importance of Kindness.🧡 Click the image for more Hello Reader, I am also a big believer of being kind to yourself and how it can make it easier to be kind to others, on certain aspect like speaking to yourself and to others with kindness and maybe all aspects. You live with yourself more than anyone and one thing you might be missing in your self care routine is self-kindness. Living with sickle cell anemia (SCA) or caring for someone who does can be incredibly challenging. The physical,...
12 months ago • 2 min read
Empowering Our Warriors: Stories, Resources, and Entertainment.🧡 Click the image for more Hello Reader, This month, we’re shifting our focus to inspiration and empowerment for our sickle cell warriors and their caregivers. Living with sickle cell disease comes with its unique challenges, but it also brings incredible resilience and strength. Here are some heartwarming stories, valuable resources, and a special movie review that highlights the power of community, hope, and perseverance. 1....
12 months ago • 2 min read
That Daily Summer Routine.🧡 Click the image for more Hello Reader, Summer is here, and with it comes a unique set of challenges and opportunities for families. Whether you're planning vacations, looking for activities to keep your children engaged, or just aiming to make the most of the sunny days, we've got you covered. Also, it's important to ensure that our sickle cell warriors have a safe and enjoyable season. Here are some essential tips to help you and your child navigate the summer...
about 1 year ago • 2 min read
Hope Through Progress: Advancing Sickle Cell Care Globally.🧡 Click the image for more Hello Reader, In this week's newsletter, we have something exciting and different planned for you! But first, I want to hear all about what you did for World Sickle Cell Day. Share your stories and activities with us! 🤩World Sickle Cell Day Celebration Yesterday, June 19th, we celebrated World Sickle Cell Day, a day dedicated to raising awareness and advancing care for those living with Sickle Cell Anemia...
about 1 year ago • 3 min read
5 Must-See Posts About Sickle Cell Anemia.🧡 Click the image for more Hello Reader, Today, I am excited to share with you five insightful and impactful posts about Sickle Cell Anemia (SCA) that you shouldn't miss. These posts provide valuable information, personal stories, and practical advice for managing SCA and improving quality of life. Whether you're a patient, caregiver, or healthcare professional, these posts offer a wealth of knowledge and support. Understanding Sickle Cell Anemia: A...
about 1 year ago • 2 min read
Meet these Icons: Stories that might inspire you.🧡 Click the image for more Hello Reader, Get ready to be amazed, inspired, empowered- at this point, I am just rhyming- as I share the incredible stories of FIVE individuals who are redefining what it means to live with sickle cell anemia. From the world of sports, media, healthcare, and beyond, these amazing individuals prove that nothing can hold you back. 🤩5 INDIVIDUALS REDEFINING SICKLE CELL ANEMIA. T-Boz: The Voice of Resilience Meet...
about 1 year ago • 3 min read