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A UK charity driving Digital Health Initiatives for kids and families impacted by Sickle Cell and Thalasseamia.
Just checking in – Have you had a chance to book your ELI App feedback session?🧡 Hello Reader, I hope you’re doing well! Just a quick note to say — we haven’t seen your session come through yet for the ELI App feedback testing, and we’d really love to hear your thoughts. Whether you're a parent or caregiver navigating life with sickle cell, your insight can truly shape how this app supports families like yours. It'd be really helpful if you could share with others as well. 👂🏽 It’s a simple...
Join Us in Testing the ELI App – Your Insights Matter!🧡 Hello Reader, We’re thrilled to invite you to be part of our exclusive user testing for the ELI App, designed to help parents better manage their child’s sickle cell care. Your feedback will further shape the app, ensuring it meets real needs. What’s Involved? A 30-minute 1:1 session where we explore your ideal features for the app. Hands-on testing of the app to share your first impressions. An opportunity to help improve a tool that...
The Power of Stories.🧡 The Force! @Orifunke My grandma is 88 today. A sickle-cell warrior. I hope I am able to get her to tell her story before she eventually leaves this world. 1:14 PM • Apr 7, 2020 1338 Retweets 4522 Likes Read 205 replies Hello Reader, I saw this tweet and it got me thinking about the importance of sharing our experiences. I saw it as a beautiful reminder of the invaluable wisdom and resilience found in stories of those who have lived not just for decades but who has a...